Vedder Cup at stake when Padres face Mariners as part of Pearl Jam singer's charity drive
PEORIA, Ariz. — The winner of the annual series between the San Diego Padres and Seattle Mariners will now win the Vedder Cup ...
Niners Wire10d
Sam Schulz is the toughest person Chris Beard knows. Now he's inspiring Ole Miss basketball
Sam Schulz, a 20-year-old with Epidermolysis Bullosa, has developed a close friendship with Ole Miss basketball coach Chris ...
Polar Plunge in honor of Staten Islander with rare skin disease planned for this month
STATEN ISLAND, N.Y. — A fundraising Polar Plunge to honor John Hudson Dilgen will take place this month in South Beach to ...
PMLive12d
Rare diseases: CHMP recommends Krystal’s Vyjuvek for dystrophic epidermolysis bullosa
The European Medicines Agency’s (EMA) human medicines committee has recommended Krystal Biotech’s Vyjuvek (beremagene ...
Healio14d
European Medicines Agency recommends ‘landmark’ gene therapy for epidermolysis bullosa
The European Medicines Agency’s Committee for Medicinal Products for Human Use recommended the approval of Vyjuvek for the treatment of wounds in patients with dystrophic epidermolysis bullosa, ...
Independent.ie3d
Irish researchers working on revolutionary new dressing that could repair cells of ‘butterfly-skin’ sufferers
A revolutionary dressing that aims to repair the cells of people with an extremely painful skin condition and prevent infection is being investigated by Irish researchers. It was inspired by the ...
The Clarion-Ledger10d
Sam Schulz is the toughest person Chris Beard knows. Now he's inspiring Ole Miss basketball
Sam Schulz, a 20-year-old with Epidermolysis Bullosa, has developed a close friendship with Ole Miss basketball coach Chris Beard. Schulz, who is a big basketball fan, has become an inspiration to ...
News Medical24d
Tampere University licenses drug for Epidermolysis Bullosa to Theravia
Epidermolysis Bullosa (EB) is a general term for a group of rare, incurable and inherited skin disorders characterised by blistering, painful lesions on the skin and mucous membranes.