What is Rett Syndrome? ITV Interview Andy Stevenson
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What is Rett Syndrome? ITV Interview Andy Stevenson
Rett Syndrome is a neurological condition which most often strikes previously healthy little girls between their first and second birthday, leaving them with multiple disabilities and medical complexities for life. We’re a UK charity driving treatments and a cure for Rett syndrome into the lives of everyone affected. We want a world where ...
72 views1 month ago
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Looking back at old video, now seeing where exactly her regression happened hurts so much! Knowing what I know now about Rett Syndrome, it breaks my heart seeing it happen. I recorded a lot because no one would listen, no one saw what I saw.. I wish I can go back to these moments to hold on to them a little longer. It breaks me to see her little face so confused, her tears as she woke up.. now knowing she was not understanding what was happening to her. 💔 I hate that its you my Jay. #indigo #re
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Looking back at old video, now seeing where exactly her regression happened hurts so much! Knowing what I know now about Rett Syndrome, it breaks my heart seeing it happen. I recorded a lot because no one would listen, no one saw what I saw.. I wish I can go back to these moments to hold on to them a little longer. It breaks me to see her little face so confused, her tears as she woke up.. now knowing she was not understanding what was happening to her. 💔 I hate that its you my Jay. #indigo #re
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